|
|
Guest Book
All visitors to the site are welcome to post to our guest book.
In addition to your name, please tell us
- What brought you here
- Ways we can support you/your loved ones more fully
- Ideas to improve our site
- More ways we can help you.
|
Thank you!
Page: 1/4
Posted
by Judy on 2/6/2010 at 11:34:09 AM EST.
Subject: 1 1/2/ years from diagnosis |
I was diagnosed with PMP 1 1/2 years ago. I had the cytoreductive surgery and the cancer was at the early stage. I was diagnosed after an appendectomy in July 2008. I am very fortunate that it was diagnosed early. My surgeon is Dr. Ahmad from University Hospital in Cincinnati, Ohio (my hometown). I was lucky to have Dr. Ahmad so close to home. He is a wonderful surgeon and he made the whole experience easier to deal with. He has a great staff and everyone at the Barrett Center in Cincinnati is awesome. I have CAT scan's every three months now and am due to have one next week. Hopefully all will be clear. Lets pray for a cure for this crazy disease!!!! So far I am cancer free!!! |
Posted
by Kerry on 1/31/2010 at 8:02:15 PM EST.
Subject: Appendix Cancer Stinks! |
My mother passed away today from appendix cancer. She has the "shake and bake" surgery and was 100% cancer-free for nearly 9 months. The, the cancer came back fast and strong.
I visited the site to find a charity for my mother's friends to donate in her honor. |
Posted
by Jeffrey Phillips on 1/16/2010 at 12:26:26 PM EST.
Subject: PMP Sugarbaker |
My wife and I are on our way to DC for a second look surgery with Dr. Sugarbaker scheduled for January 20th, 2010. I'll keep up with this site to see what develops. Email me to find out more of our experience or catch me on facebook (Jeff Phillips).
email: philcall@cfl.rr.com |
Posted
by Susan on 1/15/2010 at 5:08:17 PM EST.
Subject: dad with PMP |
My dad was diagnosed 3 years ago, he is 79. There don't seem to be a lot of people who are his age that he can talk to. Wondering if anyone else out there is past 65. |
Posted
by Rob Samuel on 11/12/2009 at 2:54:02 PM EST.
Subject: |
I have no loved ones with this disease, but someone I know does. I happy to have been able to find this website, and help out. |
Posted
by kimberly kazmerski on 11/5/2009 at 10:29:35 PM EST.
Subject: |
Hello!
I am so HAPPY to find this website!! My mom was diagnosed with PMP about 17yrs ago! She has been doing wonderfully -with a few exceptions and setbacks (3 surgies) - we are currently monitoring a small possible tumor in her abdomen now - rechecking CT in 4 months; Last occurence was 5yrs ago and all of this support did not exist even then; This is wonderful; She has received all of her treatments at the Mayo Clinic in Minn with Dr Donahue as her surgeon; She is very happy with her team there; I would love to get involved in this community ; how can i help??
|
Posted
by Linda Smith on 11/3/2009 at 2:15:15 PM EST.
Subject: survivor |
Hi, I had surgery June 07, MOAS w/HIPEC, I was lucky to have a specialists in my hometown of Louisville, KY. Surgery took place at University Louisville Hospital. I am currently on CTScans yearly. I didn't discover my PMP until a 14 months after a ruptured appendicts. I had 3 abdominal surgeries within 19 months, the last one being MOAS. This is a great website, with so much info.Thanks so much, I look constantly for new info on this cancer and just happened across your website today. God Bless you. |
Posted
by Peter Radike on 10/26/2009 at 1:03:22 PM EST.
Subject: PMP |
Hello, I'm Peter from Gehrden (Hannover) , Germany. Last year in Juni ihave diagnoses PMP. I've got Surgery in the Medizinische Hochschule Hannover by Prof. Dr. Klempnauer ( he learnd byDr.Sugerbaker)HIPEC etc. Now in Oct. 2009 i feel well and I have a good prognose.I'am 61 years old an my english is not so good:-) I'am happy that I found this Web-Site. If someon will contact me privat mail to: peter.radike@gmx.de
Thanks and have a Good Luck!! |
Posted
by E Hardy on 10/23/2009 at 12:50:01 AM EST.
Subject: Info |
Thanks for the information about this disease. My brother has had it for 14 years. He has had several surgeries because it continues to return. The last surgery they couldn't get a lot of it out. He is on his 2nd round of chemo now. I have become very aware now that this disease is fatal. I was somehow forgetting that part during the times he has been bad but then recovered for awhile. I am afraid now that the only thing that will save him is a miracle from God. So I have been looking up information and I am going to pass this and the pmp pals network info on to him. If I'm feeling the way I do I can't imagine what he is feeling. I didn't know there were support groups for his specific cancer. Anyway sorry to write so much I am just coming to terms with this. Thanks so much for the information and I am determined to get myself and other family members involved in this organization and hopefully join in the Cleveland 5K next year. |
Posted
by M E Harrison on 9/21/2009 at 1:15:42 AM EST.
Subject: |
I was diagnosed in April 2009 and have surgery and intra-abdominal chemo during surgery. doing the surveillance CTs now and looking for information. Thanks for this website. I got some valuable new info and will continue to read this site. meh |
|
|