PMP Patient Registry: PROGRESS in PSM
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Patient Requested Organized General Reports and Evaluation of Surgical Statistics: The PROGRESS in Peritoneal Surface Malignancies Program
The PMP Research Foundation is proud to be a member of The American Society of Peritoneal Surface Malignancies (ASPSM).
ASPSM has initiated a data collection program to collect important data regarding how the most common peritoneal surface malignancies (including PMP) are diagnosed, how the patients are treated, and their outcomes.
Click here to view/print the PROGRESS in PSM Form. See details below on how to complete the form. Once the form is complete, send directly to ASPSM by fax to (410) 951-4007 or email to progress@hipec.org.
About PROGRESS
The American Society of Peritoneal Surface Malignancies (ASPSM) was created to improve the care of patients around the world afflicted with peritoneal malignancies. Several committees have been created in order to facilitate education, research, imaging and treatment of this group of patients.
The ASPSM patient resource committee has put together the PROGRESS in Peritoneal Surface Malignancies program, which represents a strategy to collect important data regarding how the most common peritoneal surface malignancies are diagnosed, how the patients are treated, and their outcomes.
Collection and analysis of these data will help all healthcare providers and patients understand the importance of early recognition of the common signs and symptoms of peritoneal surface malignancies as well as the importance of early referral to a multidisciplinary treatment center.
Recognizing that the success of a project is directly related to keeping it simple, ASPSM has drafted 3 pages to collect this information.
Page 1 is to be completed by the patient. It includes questions regarding your insurance, how your carcinomatosis was discovered and what treatments took place before you were referred to a peritoneal surface malignancy center. ASPSM has also included a question regarding out-of-pocket expenses incurred in order to receive cytoreductive surgery and HIPEC.
Page 2 is to be completed by the patient's surgeon and is for the collection of medical data. In order to facilitate the cooperation of all healthcare providers, ASPSM has included a space for the patient to authorize the doctor to fill out the requested information.
Page 3 contains a confidentiality statementregarding the information collected and also requests a signature from the patient stating whether ASPSM may contact you for follow-up.
Finally, the form includes an email address and a fax number to where the 3 completed pages can be sent.
Thank you for participating in this effort to improve the understanding and treatment of PMP and other Peritoneal Surface Malignancies.
