My mom was daignosed three years ago with PMP after her tumor from ovarian cancer leaked. She has had two surgies an the last one was last year around this time. She went for a CAT scan a couple months ago and the fluid is already where it was last year at this time when she had her last surgery. The Doctors around here really do not know how to treat this and they are just waiting. We go to the Dr's today for a checkup and maybe I will see if they can do a biopsy just to make sure that the fluid in there is not cancerous. Really do not know what we are doing here. HELP!!!

Just lost my cousin to PMP at the age of 47. He had been battling this disease for about 3 years. Coincidence or not his and my first cousin was also diagnosed with PMP about 2 years ago. She is now 50 and doing well. I know this cancer is not thought to be genetically linked, but the fact that 1st cousins both have/had this cancer seems to show a link to me. Yes, the doctors are studying both of their cases to try to confirm this link. Both were at stage 4 when diagnosed, but my cousin that passed away was not a candidate for surgery. My cousin that is doing well right now with regard to PMP, simultaneously had breast cancer - two primary cancers at once. Again, she is doing well, though she is waiting for results from an mri on her liver where there is "something". I am wondering if anyone else is aware of possible genetic link in their experience. Thank you.

Hi. My Mom Nancy has been suffering from PMP since 2002. She's had 3 surgeries since then, and is about to undergo more at MGH in Boston. Her oncologist Dr. Jefferey Clark, and surgeon, Head of GI Surgery at MGH-Dr. David Berger,deal with multiple patients with PMP. I fear with growth in less than a year from last April, that her chances of survival are dwindling. But her team at MGH is excellent.

Are there any other patients on this site in the Boston area?

I am 2yrs, 2 months, post-op from the cytoreduction, HIPEC ordeal I am thanking the good Lord everyday that I am cancer-free and doing well. Otherthan hernia repair 11 months following the PMP surgery my strength is good and can finally roll over in bed w/o any discomfort now! My diagnosis was made early on in this journey of mine for which I am so very grateful. My prayers go out to everyone who has gone thru this and to all the loved ones supporting those patients. People still say to me "How weird is that?" When I try to explain the appendix/tumor/CA thing they don't know what to say. I had a wonderful experience with the surgeon and the wonderful staff at UCH Cincinnati, Dr. Sussman was my surgeon. There are no words to describe how I felt when he was describing the procedure to me. It's a blessing for me that I am strong in my faith b/c that's what got me thru. I'm spoken to many patients, pre-op, to try and help the understand this. I gave the doctor's staff permission to have people call me. I wish the best for everyone.

My brother has been diagnosed with PMP last week. He has had a very large abdomen for like 10 years but he thought he just need to lose wieght. In the last year he lost 100 lb. but his pant size never changed. He does not have insurance after being laid off last year from his job. I am just tring to understand this cancer that he has and what can be done for him.
Thanks